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Lawmakers Shouldn't Overlook Rare Disease Therapies' Value

By Alice Chen, Molly Frean and Yao Lu ( March 19, 2025, 5:03 PM EDT) -- The ORPHAN Cures Act, reintroduced in Congress on Feb. 4, aims to protect and promote the development of treatments for rare diseases, or orphan drugs, by amending the Inflation Reduction Act to exclude these products from Medicare price negotiations.[1]...

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